Saturday, July 30, 2011

mixing illness and MS=ER

So an interesting couple of days..yesterday morning I couldn't walk at all and I really had to pee. Real bad. Shawn called for an ambulance b because I couldn't move or sit up. Well I had to spend all day in the ER but there is some light at the end of the tunnel. I had to do an MRI right then and there. They saw no new lesions or any pronounced old ones!!!!!!!!!!!!! That made me so happy. They ended up discharging me because I am getting over an upper respiratory infection while it is also battling myself. Even this morning when I woke up and desperately had to pee again and had trouble moving my feet I had the best husband EVER help me to the bathroom. So since my body is attacking my good immune cells it also needs to attack the bad germs. I guess my body is not a good multitasker anymore.

Tuesday, July 19, 2011

MS=More Strength

So today I have decided that MS stands for More Strength. You need to grow strength to fight through this stupid disease.

Wednesday, July 13, 2011

forget the false fantasy

With MS you will sometimes predict your future; like I will be unable to walk, I will be in a wheelchair, or I will have a lower life expectancy. All of which are NOT definite. I find myself saddened by the limitations I sometimes have and think the first two but I see with positive thinking and acceptance can get past it. Easier said than done but then I remember what Shawn tells me. If you take life too seriously, you never get out alive.

The point is, you never know what the future will hold and if you can't do anything about it; why worry?? Just sit back and enjoy life with friends and family at your side.

Thursday, July 7, 2011

Little victories

I write in celebration of my own little victories. You know those caps that you need to pull off to pour out the toothpaste in many cases? I was having the hardest time putting them back on so I would leave it open, hence the toothpaste tube would have dried toothpaste on it and be unsightly. Colgate has the flip-top lid so I would try to get that one. Well after running out of toothpaste the cheapest brand was one with the normal lid. Lately I have been able to put the lid back on with no trouble! I am now so excited about this every time. You have to celebrate the little victories in life.

By the way I just had my four year anniversary on the 5th. I found out I have MS "inconclusively' though. Did not have insurance and instead of referring me to medicaid I had to keep it a secret until I could they said. Thank you Cleveland Clinic because after I had foot drop where I walked like Igor, fell A LOT, and once pissed myself, I couldn't walk and they took me to Metro when they got me on steroids and on medicaid. Anyways my dear friend Trina and my mom were at the Mellen Center when they first diagnosed me and I couldn't begin to even thank them for how much it meant to me to have them there.

Monday, July 4, 2011

new chair less adventure

Our friend Brian Hinz gave Shawn a new computer chair so adios super adventure chair! Now I can update and not fear for my life. Ok over-exaggeration there.
I did officially get denied occupational theapy. I guess being 28 with MS you still do not need it. But hey I have come up with ways of describing how I am doing.

On good days M.S. stands for More Surprises

on kinda cruddy days it is Mostly Stupid

and on horrible, my body is not behaving properly I go all Richard Pryor and it is
MORE SHIT you gotta deeal with

today is in between More Surprises amnd Mostly Stupoid because my right hand is numb a little. But I have had worse.