medicare not so hot

I recieved a letter today from the local social security office telling me I am going to be getting only $501 for SSI/SSDI which is some $167 less. I call and ask why because I use my SSI money to pay my rent which is $500 and then my utilities. yeah how the fuck am I supposed to pay for my utilities when I will get the bare minimum to pay the rent. I call abd ask why and they say the $167 goes to paying my medicare. I DIDN'T EVEN FUCKING ASK TO GET MEDICARE!!!!!!!!!!!!!!!!!!!!!!!!!!1
The reasong they put me on medicare because I now have an incurable disease. Now they have to pay for it and it doesn't even cover it all.
Shawn is not working much at the Scottish Rite and has applied for so many jobs on Craigslist. It is not his fault at all. I just don't know what to do....

research and prescriptions

I may do two research studies for OHSU and the VA hospital. One on Lypolic acid and the other on balance. I really want to do the one on balance but I mentioned I had ONE seizure in my life so I may not be able to do it. And I have a prescription for a bedside commode a wheelchair and a cooling vest but I need to find a merdical supply store that offers Care Oregon. blech and now I need to get back to cleaning. yay

nearly a week in the hospital

Having to stay at the hospital because your MS does not work well with other illnesses BLOWS. I just had an upper respiratory infectikon and for most people it only takes a couple of days to clear up. With MS I get the pleurae of being there 6 days. And looking chewed up like a junkie.

\At least I am home now. I missed Shawn and our puppy so much They are my family.