Some people see the worst outcomes in the cards that you are dealt with, and that definitely true with MS. Outsiders say-"Having MS will mean you are going to be in a wheelchair-You will become unable to If you have a shaky hand for example that will never go back to normal-=both of which are UNTRUE. At least in my experience. Had a shaky left hand without full sensation but it is back to NORMAL with the hypnotherapy help of Richard Chase of Chase The Mind Hypnosis. Every time I see someone in a wheelchair or an ad for a power scooter I think to myself-"I will NOT be in one until I am older. Even though I use a cane I am healthier than I have ever been. I eat leafy greens (spinach, collard greens-both are high in iron and calcium, ride my stationary recumbent bike and lift hand weights (I am seeing muscle in just 2 weeks), quit smoking when I was diagnosed,
who says that with a disease you are going to have their and project their negativity? Telling a person that these things will happen, some people may fall for believing it. I think with the power of psitive outlooks you can maybe change your future outcomes.
Monday, March 28, 2011
Friday, March 18, 2011
Pizza and shaky hands
So tonight Shawn and I without a car and various ingredients to make any dinner have decided to get some pizza delivered. After a while the pizza was delivered and we were both so Happy and hungry for the pizza. It was too hot so Shawn grabbed us some cutlery- forks and knives. As I go to cut a slice of it my right hand started shaking uncontrollably. Why?????????????!!!!!!! It just isn't fair. Shawn offered to cut my pizza for me but I'M 28. I felt like such a child. I am still shedding tears about this conundrum with the pizza. Just so frustrating when my muscles crap out and I have to train my body on how to do things, i.e. tie shoelaces, button a button, and now maybe cutting my food?!
Monday, March 14, 2011
trying to strike the fear
Well in about two weeks I will see my neurologist again, start the Rebiff and possibly get an MRI of my spine because I know that was mentioned when I was last there. Oh and I have to speak to them about getting help to fill out my Social security Disability form. I am just nervous about all that. Mostly about starting a duff medication. I don't know how this will have to be injected. I hope they have someone who can show me like they had for Copaxone. I know I can get past the fear and maybe it's like a swimming pool...you just have to jump in?
Thursday, March 3, 2011
Frustratilon!!!!!!!!!!!!!!
so I did my workouts which z am quite proud of and was able to do the laundry too. I felt quite productive. Then as I am about to go outside to wash the inside of our trash can- it was quite nasty looking- I fell right on my ass as I was leaving the front door. WEEEEE go MS. I guess even with my workouts to make my body stronger it still creeps up on me.
Wednesday, March 2, 2011
remembering my limit
I try to do so much around the house. Things that I used to feel normal doing. Like dishes, laundry, cleaning and other daily activities. Now I know I either must take time for breaks or be open to help. It's just that I am not used to that.
I am working out again though. Right now sets of 30 3x a day crunches that I want to do 5-6 days a week and each week adding 10 more. then doing 3 reps of 12 lifting the 4lb weight I have for each arm then holding the weight over the the middle of shoulders with both hands and putting it over my head. I see people in wheelchairs and they are so DUMPY! I will never let myself be one of those people. Even though I have mobility issues, balance issues, everything else that comes with MS, I know I am too strong to not put up a fight
I am working out again though. Right now sets of 30 3x a day crunches that I want to do 5-6 days a week and each week adding 10 more. then doing 3 reps of 12 lifting the 4lb weight I have for each arm then holding the weight over the the middle of shoulders with both hands and putting it over my head. I see people in wheelchairs and they are so DUMPY! I will never let myself be one of those people. Even though I have mobility issues, balance issues, everything else that comes with MS, I know I am too strong to not put up a fight
Friday, February 25, 2011
Keep those toes a wiggling!
When I had my left side of my body basically go numb and I couldn't even pick up my legs when I walked, I walked like Igor. Months later was when I could not even walk one day and Shawn drove me straight to the ER. They started me on an IV of stereoids which lasted about 5-6 weeks. After a short while on the stereoids I could slowly move my body a bit more every day. My father installed me with great but simple wisdom- "Keep those toes a-wiggling". And you better believe I did!! Now even today when my range of motion is a lot better than it was then I still keep them wiggling. It is like the saying "If you don't use it you lose it"? well not exactly but I think now that I can do it I want my body to keep remembering how to do things. I mean when I was in the hosoital they had to retrain me to tie a shoelace and button a button.
When your body has a new disability you have to re-teach your body how todo it, even if it is the simplest thing. So don't take tying your dhoelaces for granted because there are grown people out there who have a disability that prevents them from doing it, which has made me cry because even a 5 year old can do it! But after re-learning how to do it with your disabiity you must remain patient. MS did teach me one very important lesson-PATIENCE!
So this is why I cannot sleep with socks on. I need to have freedom of my toes so I can keep them a-wiggling.
When your body has a new disability you have to re-teach your body how todo it, even if it is the simplest thing. So don't take tying your dhoelaces for granted because there are grown people out there who have a disability that prevents them from doing it, which has made me cry because even a 5 year old can do it! But after re-learning how to do it with your disabiity you must remain patient. MS did teach me one very important lesson-PATIENCE!
So this is why I cannot sleep with socks on. I need to have freedom of my toes so I can keep them a-wiggling.
Saturday, February 19, 2011
waight gain reasons?
SoI have recently gained a lot of weight since the MS 1st started taking it's toll. I have read in one post online somewhere about people gaining weight from taking Copaxone. There is also the lack of walking around much but this is what I do not understand...I eat less than I used to, eat better, and workout. And it could be because of age. I am healthier than I ever was. I quit smoking, eat better and workout as best as I can. It really upsets me because I look in a mirror and I get grossed out by myself. How can Shawn or anyone find me attractive? argh it is so frustrating. what I can continue to do is eat right and workout as I have been.
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