Monday, March 28, 2011

Telling yourself that you are in control

Some people see the worst outcomes in the cards that you are dealt with, and that definitely true with MS. Outsiders say-"Having MS will mean you are going to be in a wheelchair-You will become unable to If you have a shaky hand for example that will never go back to normal-=both of which are UNTRUE. At least in my experience. Had a shaky left hand without full sensation but it is back to NORMAL with the hypnotherapy help of Richard Chase of Chase The Mind Hypnosis. Every time I see someone in a wheelchair or an ad for a power scooter I think to myself-"I will NOT be in one until I am older. Even though I use a cane I am healthier than I have ever been. I eat leafy greens (spinach, collard greens-both are high in iron and calcium, ride my stationary recumbent bike and lift hand weights (I am seeing muscle in just 2 weeks), quit smoking when I was diagnosed,

who says that with a disease you are going to have their and project their negativity? Telling a person that these things will happen, some people may fall for believing it. I think with the power of psitive outlooks you can maybe change your future outcomes.

Friday, March 18, 2011

Pizza and shaky hands

So tonight Shawn and I without a car and various ingredients to make any dinner have decided to get some pizza delivered. After a while the pizza was delivered and we were both so Happy and hungry for the pizza. It was too hot so Shawn grabbed us some cutlery- forks and knives. As I go to cut a slice of it my right hand started shaking uncontrollably. Why?????????????!!!!!!! It just isn't fair. Shawn offered to cut my pizza for me but I'M 28. I felt like such a child. I am still shedding tears about this conundrum with the pizza. Just so frustrating when my muscles crap out and I have to train my body on how to do things, i.e. tie shoelaces, button a button, and now maybe cutting my food?!

Monday, March 14, 2011

trying to strike the fear

Well in about two weeks I will see my neurologist again, start the Rebiff and possibly get an MRI of my spine because I know that was mentioned when I was last there. Oh and I have to speak to them about getting help to fill out my Social security Disability form. I am just nervous about all that. Mostly about starting a duff medication. I don't know how this will have to be injected. I hope they have someone who can show me like they had for Copaxone. I know I can get past the fear and maybe it's like a swimming pool...you just have to jump in?

Thursday, March 3, 2011

Frustratilon!!!!!!!!!!!!!!

so I did my workouts which z am quite proud of and was able to do the laundry too. I felt quite productive. Then as I am about to go outside to wash the inside of our trash can- it was quite nasty looking- I fell right on my ass as I was leaving the front door. WEEEEE go MS. I guess even with my workouts to make my body stronger it still creeps up on me.

Wednesday, March 2, 2011

remembering my limit

I try to do so much around the house. Things that I used to feel normal doing. Like dishes, laundry, cleaning and other daily activities. Now I know I either must take time for breaks or be open to help. It's just that I am not used to that.

I am working out again though. Right now sets of 30 3x a day crunches that I want to do 5-6 days a week and each week adding 10 more. then doing 3 reps of 12 lifting the 4lb weight I have for each arm then holding the weight over the the middle of shoulders with both hands and putting it over my head. I see people in wheelchairs and they are so DUMPY! I will never let myself be one of those people. Even though I have mobility issues, balance issues, everything else that comes with MS, I know I am too strong to not put up a fight

Friday, February 25, 2011

Keep those toes a wiggling!

When I had my left side of my body basically go numb and I couldn't even pick up my legs when I walked, I walked like Igor. Months later was when I could not even walk one day and Shawn drove me straight to the ER. They started me on an IV of stereoids which lasted about 5-6 weeks. After a short while on the stereoids I could slowly move my body a bit more every day. My father installed me with great but simple wisdom- "Keep those toes a-wiggling". And you better believe I did!! Now even today when my range of motion is a lot better than it was then I still keep them wiggling. It is like the saying "If you don't use it you lose it"? well not exactly but I think now that I can do it I want my body to keep remembering how to do things. I mean when I was in the hosoital they had to retrain me to tie a shoelace and button a button.

When your body has a new disability you have to re-teach your body how todo it, even if it is the simplest thing. So don't take tying your dhoelaces for granted because there are grown people out there who have a disability that prevents them from doing it, which has made me cry because even a 5 year old can do it! But after re-learning how to do it with your disabiity you must remain patient. MS did teach me one very important lesson-PATIENCE!

So this is why I cannot sleep with socks on. I need to have freedom of my toes so I can keep them a-wiggling.

Saturday, February 19, 2011

waight gain reasons?

SoI have recently gained a lot of weight since the MS 1st started taking it's toll. I have read in one post online somewhere about people gaining weight from taking Copaxone. There is also the lack of walking around much but this is what I do not understand...I eat less than I used to, eat better, and workout. And it could be because of age. I am healthier than I ever was. I quit smoking, eat better and workout as best as I can. It really upsets me because I look in a mirror and I get grossed out by myself. How can Shawn or anyone find me attractive? argh it is so frustrating. what I can continue to do is eat right and workout as I have been.